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Nystagmus Network

(Nystagmus network- Support for those with Nystagmus Visual Impairment)

The Nystagmus Network supports people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

Contact details

Contact Name
Sue Ricketts
Contact Position
Executive Information and development manager
01427 718093
Alternative Contact
Linkedin: Twitter: Facebook: Instagram: Instagram/NystagmusNetwork


Activity location
We operate a virtual service and have no premises. Our website is open 24/7 and we operate a telephone support line 9-5 weekdays
70 Hyde Vale,
SE10 8HP

Time / Date Details

When is it on
Office hours daily. 24/7 website support
Opening times (phone)
9-5 weekday telephone support

Further details

Catchment Area
We are a national organisation and support all ages throughout Camden.
Capacity or waiting list
No waiting list- self referral via telephone-email.
Referral required?
Last checked date
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